By: Shellena L.
To the Parents Reading This:
If you are the parent of a child with a developmental disability, you did not choose this journey—but you are walking it with courage every single day.
You are the one noticing milestones, celebrating progress, worrying about the future, and pushing systems to see your child not as a diagnosis, but as a whole human being. This post is for you.
Your voice matters.
Your advocacy matters.
And your child’s dignity matters.
Why This Conversation Is So Important
Children with developmental disabilities are often talked about—but not always listened to. Decisions are sometimes made quickly, by professionals who may not know your child the way you do.
That is why parent advocacy is essential.
Advocacy ensures that:
● Your child is seen as capable, not limited
● Your child’s communication—spoken or unspoken—is respected
● Your child is included, not sidelined
This is the heart of Nothing About Us Without Us: no decisions about your child should be made without your child—and without you.
Voice does not always sound like words.
Some children communicate through behavior, pictures, devices, routines, or body language. As a parent, you are often the first person who truly understands how your child communicates.
When you speak up for your child, you are teaching the world how to listen.
Advocacy means:
● Asking questions
● Requesting evaluations
● Pushing for appropriate services
● Insisting on respect
You are not being difficult.
You are being responsible.
Why Language and Inclusion Matter
The language used about your child—by schools, doctors, and agencies—shapes expectations.
Respectful, person-centered language:
● Protects dignity
● Encourages inclusion
● Sets higher expectations
Inclusion means your child is not just present, but participating—at school, in the community, and in family life.
Inclusion is not a favor. It is a right.
Mississippi Parent Resource Guide
Children with Developmental Disabilities
This guide is designed to help Mississippi families understand available services, support systems, and advocacy tools for children with developmental disabilities.
Early Intervention (Birth–3)
Mississippi First Steps Early Intervention Program
Provides services for infants and toddlers with developmental delays including speech, occupational, and physical therapy. Services are family-centered and often delivered in natural settings such as the home.
Special Education Services (Ages 3–21)
Mississippi Department of Education – Office of Special Education
Public schools must provide special education and related services under IDEA, including Individualized Education Programs (IEPs). Parents have the right to participate in all decisions.
Healthcare & Medicaid Services
Mississippi Medicaid & EPSDT
Covers medically necessary services for eligible children under 21, including therapies, screenings, and behavioral health services.
Developmental Disability (ID/DD) Services
Mississippi Department of Mental Health & Division of Medicaid
Provides community-based supports, behavioral services, respite care, and skill development programs for children and families.
Assistive Technology & Specialized Support
T.K. Martin Center for Technology and Disability
Offers evaluations, assistive communication tools, and specialized services for children with complex developmental needs.
Planning for the Future
Mississippi Department of Rehabilitation Services (MDRS)
Supports youth and adults with disabilities in preparing for employment, independence, and community participation.
Parent Advocacy Tips
• Keep copies of evaluations, IEPs, and medical records
• Request assessments early if you have concerns
• Ask questions and follow up in writing
• Learn your child’s rights under IDEA and Medicaid
• Connect with other parents and advocacy groups
• Trust your knowledge of your child
